Monthly Archives: January 2014

Building frustration (January 2014)

For what is about to be unleashed, I apologise. Please understand, if this seems to be more of a cathartic, self-therapeutic rant than a considered, mature piece of writing, that it comes from two years’ of building (in both senses … Continue reading

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Raising the game (January 2014)

As I stand and watch two grown men tighten straps, fasten belts and anchor harnesses to secure my daughter’s wheelchair into the adapted minibus now required to transport her to school, my stomach turns. It is not an unfamiliar sensation. … Continue reading

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Love, Actually

  I have a confession to make. Somewhere around 5 weeks before Christmas, the hubby and I spend an evening wrapped in a duvet on the sofa watching ‘Love Actually’, again. I realise this is probably an admission which will … Continue reading

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Happy New Year (from January 2014)

As a child, New Year’s Eve was my absolute favourite time of the year, more exciting by far than my birthday or Christmas. Every year we would go to stay with my aunt, uncle and cousins, and New Year’s Eve … Continue reading

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Playing Mary, part 2 (from December 2013)

Well, I was right. Mostly right. As predicted, today was something of an emotional mess. Hannah played Mary, ‘Purple’ class played green aliens, 80 other immensely special (in the ‘unique’ and ‘brilliant’ sense of the word) children played stars, angels, … Continue reading

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Playing Mary (from December 2013)

Today, a quiet and simple note came home in Hannah’s school bag. ‘We have chosen Hannah to be Mary in our Christmas play. Please can you send in a blue dress.’ Now, this is probably a special moment for any … Continue reading

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Some inevitable truths (from October 2013)

I like to think that I am generally a realistic, feet-on-the-ground, faces-the truth kind of a person. Since the initial shock of diagnosis wore off, I have imagined that I am facing the reality of my daughter’s condition in an … Continue reading

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Walking in someone else’s shoes (from October 2013)

  In a few days’ time, I will be playing at single parenting for approximately 89 hours. It’s a daunting prospect in many ways, not least because I am increasingly unable to carry the six year old up or down … Continue reading

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Lessons to re-learn (from September 2013)

Son number one is out of nappies! Fifteen days in ‘big boy pants’ and only 3 accidents to date! Son number one is 3 years and 2 months old: this is not the boast of a competitive mother whose 9 … Continue reading

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A night with Hannah (from August 2013)

It is 12.04am and Hannah is awake. She has been awake for just over an hour and it is going to be another long night. Four years of experience show that there is little remedy for this ‘manic’ waking, more … Continue reading

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