Monthly Archives: July 2014

I just want my book!

  Every night, at bedtime, Hannah chooses which book she would like to have read to her in bed. We give her a choice of 6, laid out in front of her on her duvet, she looks at and then … Continue reading

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To her teachers, old and new

  Last night, I wrote a blog about the imminent end of term and Hannah’s  last day at her school of the past 3 years. Today, the actual last day, things were much as expected, and I have no wish … Continue reading

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The end of term

   Tomorrow is the last day of term. I have not felt this desolate or scared, this guilty or helpless, have not shed this many tears, since the days following diagnosis. And no, it’s not the prospect of 5 and … Continue reading

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Learning to swim

   I’m not a big fan of extended metaphors which try to explain the reality of living with a child with profound disability. Inevitably, they come unstuck somewhere along the way and, even if they don’t, they generally describe the … Continue reading

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