Tag Archives: rett

Daring to believe

As a kid (and as an avid tennis player and supporter) I used to feel a sense of loss on the second Monday of July every year – the day I would wake up and realise Wimbledon was over and … Continue reading

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the beauty of ‘difference’

In recent days I’ve started to feel a little uncomfortable. Guilty. Self-questioning. Not that these are new sensations for me (I went to an all girls’ grammar school, after all), but this has been more than schoolgirl awkwardness. In the … Continue reading

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Unfinished Thoughts

I haven’t written a blog since June. Actually, that’s not strictly true; I haven’t FINISHED a blog since June. I’ve started several (too many to admit) – some on screen, a couple on discarded till receipts, and the rest only … Continue reading

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Damaged Goods

Sometimes, in trying to explain the impact that Rett Syndrome has had on our lives, I have referred to myself and my husband as ‘damaged goods’. People don’t respond to this very well in general, I think they see it … Continue reading

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Making it Personal

    There are 289 shopping days to go until Christmas, yet my two young sons already have their wish lists well underway. One trip along (not even inside)  the high street shops last weekend generated several excited squeals of ‘ooh look’ … Continue reading

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